Hi, I'm Sarah, a 14 year-old high school freshman from Washington State. When I was born, I had small, underdeveloped eyes, and my left eye had glaucoma. Despite urgent surgery, I lost all vision in my left eye when I was a few weeks old. My right eye then developed glaucoma when I was three. Having glaucoma means I have had many eye surgeries, and I have an Exam Under Anesthesia about twice a year. I use eye drops every morning and night, and have lots of eye pressure checks at home, using an Icare tonometer. Without the ability to monitor my eye pressure frequently at home at different times of the day, my eyesight would be much worse. Glaucoma cannot be cured. The better it is managed, the better the chance for keeping sight. I want other kids to have the same opportunity as me, working closely with their glaucoma specialist and family, so they can keep their vision as long as possible. That’s why I set up Saving Kids’ Sight.
Saving Kids' Sight Goals:
- Increase awareness of glaucoma in kids.
- Encourage more research on how to manage kids’ glaucoma.
- Share research results between glaucoma specialists.
- Set up an iCare tonometer lending library at Duke Eye Center.
- Support kids with glaucoma and other vision impairments